If you look back to a post from a couple of weeks ago titled L.P. I complain about Gage having to go the clinic for a lumbar puncture, and how it was going to totally suck. Well Gage never got the L.P. that day, his blood counts were not high enough for him to under go heavy ass doses
of chemotherapy, so it was postponed for a few days. He didn’t pass then either, ok…odd. Gages doctor wanted to try again in three days, we put our foot down though, no we want to wait for at least a week.
There is so much stress when getting ready for a lumbar puncture. Because Gage does get sedated, he is not able to eat or drink anything for six hours before the procedure. Which is no fun for anybody involved. I make a conscious decision to not eat or drink until Gage can, and let me tell you I am usually ready to eat my foot by the time we get the ok for a bottle; so Gage must be absolutely starving.
Then the Cyclophosphamide (which is also known as cytoxan) which is just one of the four three or four chemo’s he get that day, can burn his liver, we have to constantly be keeping him hydrated the day before. We never let his bottle or sippy get empty, the same goes for at night. I am up every hour until 4:00a.m. refilling his almond milk, changing diapers, and freaking out that I’m not going to wake up and he drinks something after 4:00a.m. It truly does make for a long exhausting day.
Finally after three failed attempts at chemotherapy Gage had high enough blood counts to actually get shit done. Thank you baby jeebus, because I do not want to have to go through another bone marrow aspiration, to see if horror of horrors the leukemia is back. I did mention the cytoxan burning his liver, right? Well I forgot since that can happen L.P. chemo days are usually eight hour days, because the doctors give Gage I.V. fluids, for three hours before. Still with no food and for at least ninety minutes after his last dose of chemo, with strict rules to keep him hydrated and to change his diaper at the signs of first pee or poop; to avoid a horrible diaper rash.
So since Gage got his lumbar puncture, he has had chemotherapy injected into his Hickman line, for four days straight. He is such a trooper and nothing seems to be able to get him down. I can’t wait for the day that I can say,”do you remember when Gage had to go through chemo, and we never thought we’d be finished?” That’s the day I am living for now.
You are amazing! I’m am right there with you that we will celebrate the day that you can look back and remember chemo. Rock on Gage, you are such a trooper!
another LP down! WINNING!!! well as far as LP’s go, winning. Goooo Gageface!
Keep it up Gage your doing great! We love you!!!
Love you gage bear!
That day is going to be awesome and it IS going to come! Love you guys mucho mucho!
Every day is a day closer to looking back on this time and remembering how absolutely strong Gage’s will to fight and you and Troy’s will to beat this thing proved to be your most triumphent times!! I love you and can not wait!!! xoxo Then it will have to be that big family trip to some place fun and exotic… NO chemo in site!!