When the pediatric unit is full of sick kids Gage has to wear a mask in the halls.
It’s The Masked Boy!
There’s not much to do in the hospital, we walk laps. Ok, I walk laps Gage gets carried, it doesn’t matter that he has lost four pounds since we first checked in eight days ago this kid still weights twenty-five pounds and he is so heavy! My arms and back are killing me. So we walk laps, Gage rides in the little tykes car for laps, and gets pulled in the wagon for more laps. Laps, laps, laps. So why have I gained three pounds since checking in? I’m doing all the work! When we are in in our room, Gage wants to be held and I don’t mean sitting in a chair rocking him back and forth held, I mean standing and swaying being held. I need a back brace!
On our nightly walk yesterday, I heard a mom who every-time she passed by me should would complain about her daughter having to share a room and how unfair it was, blablabla. Gage has his own room. After our 327th lap I had enough listening to her complain and went back to our room, but left the door open only to hear the same mom say “look a private room, must be nice.” I felt like telling her, I wish we were able to share a room*** no I don’t*** but my kid and every other kid who has their own room all have a terminal diseases! We don’t have that option to share, your kid has a broken arm, not cancer. I know your daughter is in pain and I am truly sorry about her that, but you don’t know what you’re talking about; so shut up. Instead of telling her any of this, I just got up and shut the door.
I’m sorry for not posting anything yesterday, but my wireless card isn’t working, and the nurses took out the computer with Internet access; so I do everything on my iPhone. I fingers, hand, and wrist hurt. I feel like a twelve year old boy.
Gagers is still in the hospital, still no food, the good news is he has finally stopped asking for something to eat or drink. Though two days ago I did catch him just in time as he tried to stick a piece of food in his mouth, from the food cart “empties” ***gross*** Gage is also sleeping better during the night, he just happens to get up at six in the morning so I am exhausted!! No, that still does not give you the right to tell me that if I don’t know you.
As you know Gage had his port taken out on Monday, and it sucks because we our stuck in the hospital, no trips to the outside like I have said before. The absolute worst part? They pulled all of his labs from the port, it’s too hard and scary to try and get blood from the IV in his hand, it can collapse and go bad. Now they need to stick him in his little bruised arms, where the veins are so messed up from seven tries in one arm and six in the other of failed PICC lines. The lab refused to do it this morning, so our nurse ***love her*** took Gagers to the treatment room to use the vein finder, she found one in the top of his hand to use. His arms are safe, for now.
Gages left arm after seven attempts in the last few day to put a PICC line in. Poor kid.