So one of the many things I remember from the hospital, one that I would like to forget is when we would go down for surgery, ct scans, or ultra sounds the nurses would sit my adult sized ass in a CHILD SIZED WHEEL CHAIR! which totally is not what this post is about, but I just remembered this one time when trying to shimmy my way out I actually got stuck and they had to have someone help me out. Because my ass was not meant to squeeze into a pediatric wheel chair. UGH- embarrassing memories, thanks blog post.
Anywho, the other thing I remember most about those trips in the hospital was I would be in the mini wheel chair, and Gagers would be on my lap waving to everybody we passed. I wouldn’t at look anybody we passed in the eye ever, because I hated their pitying looks it was bad enough hearing the “oh, that’s so sad and poor baby.” Really? You totally think that is appropriate to say when I can hear you? It’s not comforting to me. In fact I want to scream “yes, this is fucking sad. But would you like to know what’s worse? Pediatric cancer research sucks.”
Did you know? The federal government has made only very modest investments in research through the National Cancer Institute (NCI). For every six research dollars per patient with AIDS and every one research dollar per patient with breast cancer, a child with cancer receives only 30 cents. To us, and the families of the 35 children diagnosed with cancer each day, it is clear that much more needs to be done to ensure access to treatment and the opportunity to fully recover.
30 freaking cents, that is all Gage is worth to them. It truly is enough to make me want to march to Capitol Hill and shove this blog down their throats. To make them see pictures of Gage make them look at his face, hear his laugh, show them that he is one amazing kid. Make them love him like I do. I’d tell them to get their heads out of their asses and do something about childhood cancer research funding. Because every baby deserves the chance to grow old.
And so do the 12,500 children and adolescents in the U.S. diagnosed with pediatric cancer each year.
The money allocators should have to sit in the hospital with a kid with cancer, who can’t eat for 2 weeks, begging for some water or crying because they just want to eat or drink SOMETHING. Or crying because the treatments hurt them SO badly and they don’t understand it. Or comfort the barely conscious 22 month old in renal failure on dialysis suffering and swollen. I don’t understand why our babies aren’t as important to them
OK these men should think of it this way, those children that they are only spending 30 cents on could grow up to be the cure of such diseases as AIDS Or breast cancer! They could lose someone that could save millions because they would rather spend 6 dollars on a disease that is preventable.
P.S? My niece was diagnosed with leukemia at 2yrs old and we just sent her off to college this fall on a swimming/academic scholarship so leukemias ass can be kicked, go for it Gage!
I Hope one day there is absolutely no need for CHILD SIZED WHEEL CHAIRS and the company that makes them goes out of business. We spend billions on wars that only bring our guys back injured, mentally screwed up or worse-in boxes and billions bailing out companies that have been taking advantage of Americans for years. I vote for a “GAGE BAILOUT”! He deserves more than 30 cents…he deserves the right to pay taxes one day, vote and help unscrew this mess we have on capitol hill.
Thanks, Lisa, for posting this! XOXO
I’m in tears reading your words. I can not imagine the things you and your sweet family are going through. Especially Gage. My grandmother passed away from Cancer – its awful. I have no idea what to say but I had to leave a comment to let you know that my thoughts and prayers are with you.
Thank you so much fir your prayers and good wishes. I am so sorry about your Grandmother. xoxo