Daily Archives: February 2, 2011

Gold Ribbons

The gold ribbon is the official ribbon of children with cancer worldwide, supported, recognized and promoted by hundreds of organizations and treatment centers, families, friends, and caregivers, including:

The National Childhood Cancer Foundation

  • Association of Pediatric Oncology Nurses
  • Children’s Oncology Camp Association
  • The Candlelighters Childhood Cancer Foundation and its chapters nationwide

A man who lost is wife his called a widower. A child without a parent is an orphan. But what of a woman who loses her child? What is she called?

http://www.goldribbons.com/

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Life, Not Like I Imagined

Some days I really feel like I am barely staying afloat. The last couple of nights I have been having trouble sleeping. I lay awake for hours staring at the wall above my bed, not seeing the wall itself but a movie reel of those first nights in the hospital. Me holding Gage in my arms as a nurse tries without luck to find a vein to start an IV as Gage slips in and out of consciousness. I see his pupils start to dilate, and his mouth starts to foam. I hear the nurses asking me to please go sit in the parents waiting room, since it was starting to get crowded with all the nurses and doctors rushing in. I’m walking the hallways, again. In my nightmares I’m just walking a hallway, lap after lap after lap. CODE PINK is blaring out of the hospital loud speaker and I can’t stop screaming. This is my hell and I have been here almost every day since August 2, 2010.

These last few weeks Gage also has been suffering from nightmares, I hate that he can’t tell me what he is dreaming about. When I go in his room to check on him when he cries out at night, his sobs of terror are heartbreaking; nothing can comfort him. The look in his eyes kills me, because I wonder if he is remembering those nights, like I remember those nights. I had hoped that he wouldn’t remember any of this, that he would be too young; so far it looks like that may not be the case. I hate those nightmares for him more then I hate those nightmares for me.

I am constantly waiting for the other shoe to drop. Our lives have been such a roller coaster ride I keep praying, hoping, and wishing that we can keep on this positive healthy path Gage has been on. But he has a little cold right now, and I get up like eight times a night to make sure his cold hasn’t turned into a fever, I count his coughs every hour to make sure they don’t get worse. His poor doctors must hate the fact I have every single one of their phone, pager, and fax numbers on speed dial. Because, let me tell you since Saturday I have been calling, paging, and faxing at least three times a day. “No, Mom the cough is not in his lungs. It’s just a cold. He’s fine.” How do they know, since they haven’t seen him in a few days? We go back to the clinic for another dressing change, hopefully he will have improved by then that way we can have an easy, stress free weekend.