So you all know that Gage went to the clinic on Monday for our usual chemo, these are all of his blood counts for this week.
WBC’s Auto: 3.0(L)
RBC, Auto: 3.33(L)
HCT, AUTO: 29.2(L)
RDW, BLOOD: 15.0(H)
PLATELETS,AUTOMATED COUNT: 129(L)
NEUTROPHILS %, AUTOMATED COUNT: 43.4
LYMPHCYTES % AUTOMATED COUNT: 41.5(L)
MONOS %, AUTO: 12.3(H)
EOSINOPHILS %, AUTOMATED COUNT: 2.5
BASOPHILS %, AUTOMATED COUNT: 0.3
Everybody at the clinic was pretty happy with his results, which means I was pretty happy. Gage continues to get through everyday with little to no complications, I just hope we can continue with this positive trend he is on.
Monday at the clinic, waiting for chemo and lumbar punctures.
Wishing you all the Merriest Christmas!
It happened today. I was finishing up Christmas shopping today, while the Hubs was at the hospital with Gagers, and I hit me, came out of no where and knocked me flat on my ass. I was jealous of all the parents in the store Christmas shopping for their perfectly healthy kids. Kids who haven’t spent the last eighteen days in the hospital, kids who have not had to fight for their lives for the last four and a half months. They haven’t had to watch the devastation on parents faces as they are told their kids have a terminal illness, or see the look that crosses their face when they realize this may be one of the last Christmases they have with their kid, and it’s going to be spent in the hospital. In the last 138 days I have never gotten upset or jealous about healthy kids and healthy families, because I’d not wish this on my worst enemy.
I hate myself, for feeling this way. Really, it’s nobodies fault my kid is sick and theirs are not. Ick, even writing this makes me feel bad.
But on the plus side, we are HOME!!
Free at last, free at last, thank the doctors; I’m free at last!
No moment is guaranteed – live for today. #TDL
Sometime in September 2010.
I am so glad Gage was born in June, mainly because it is almost six months from his birthday to Christmas, and he always gets enough clothes to last those six months and more. I almost never have to buy him stuff, it’s nice. The truly best part of the six months between holidays? ***yes, Gages birthday is a holiday in our family*** The pictures. I have thousands of pictures of Gage, crappy, blurry snapshots on my camera and phone, pictures I’m glad I didn’t delete because I looked fat or my eyes were closed. These are precious memories, I will keep and cherish forever. But as fun as my amateur pictures are, the ones I love, love, love the most are the ones that http://jennbeephotography.wordpress.com takes. Theses pictures are birth announcements, Christmas cards, and birthday invitations. She is such an amazing photographer and a pretty fantastic person too! I’m so grateful to know her and call Besties.
Some out takes from this years Christmas card.
His 19th birthday was yesterday. He is the only adult in the pediatric oncology unit. His chances for survival are better with the kids then the adults, so here he stays with the “babies” but he doesn’t mind, he smiles and waves as we walk by his room for the millionth time; nods his head when he recognizes something in Gagers that makes them part of the same team. The I’m too young to die team, the I’ve been through hell and back, but I’m still here fighting team.
He wanted a lap-top computer for his birthday he knew it was expensive but hoped maybe if it was a combined birthday/Christmas gift his mom could afford to get it for him. Even though he is an adult he is still just a kid who really wants something cool for his birthday, but as his birthday grew near he knew his mom could not afford a new lap-top computer for him, but that was ok because he was going home after 57 days in the hospital and that is a way better birthday present anyway.
Little did he know the nurses who work here are the best nurses anywhere, and had taken up a collection weeks ago to get the only adult oncology patient in the pediatric unit the only thing he asked for on his 19th birthday. A lap-top computer. I love our nurses, they are truly amazing people. They go out of their way to make their patients and their families happy and comfortable.
Happy 19th Birthday Big Guy.
So I have noticed a smell hovering around Gage lately. A nasty, disgusting, OMG what is that? I’m going to vomit kind of smell. I swear I have given him sponge baths while here. But good God, what part of his body is that coming from? He hasn’t pooped in a week, maybe it’s starting to ferment in his body? Seep through his pores maybe? Nope, none of that. It’s his hand with the IV in it. ***bleck, so gross*** When I finally figured out where the stink was coming from, I quickly paged the nurse, wondering what the hell was wrong? Has it turned gan-greeny? Is it going to fall off? Oh Jeebus, an amputee?? Ok, I can deal with that. After our nurse was done laughing her ass off at me, she told me no, his hand was not going to fall off, it’s the tape and sweat and maybe food trapped in there; a weeks worth in fact. Hence the smell. There is no point in changing the dressing now, as Gagers is going into surgery this afternoon. But I guess I now know why people crinkle their noses when we walk by. Yuck, he keeps trying to pet my face with that hand, I can actually taste it if I try to breath through my mouth. ***Ewww.***