Tag Archives: candida

Lets Play the Waiting Game

We are waiting. Waiting to be put on the surgery list for anytime this afternoon, we aren’t picky about what time; just please operate today. We are hoping to be able to get a broviac inserted today. I’m kind of grossed out by the thought of the broviac, mainly because it is an IV that constantly hangs our of his body, but also since he wont be able to have a proper bath for like four months, since we have failed to pit a picc line in Gages arm, a broviac is the only option left to us since putting a port back in is out of the question right now.


The San Diego Zoo brought in animals last week, and Gagers loved them! His favorite was this parrot, he liked his bright colors and that the bird could say words! We love the Zoo and that they bring in different animal every couple of weeks, for the kids in the peds unit. It brightens up their otherwise boring days.
We still aren’t sure when we are going home, we just hope it’s before Christmas. I think subconsciously I knew we’d be in the hospital the whole month of December. How else can you explain the fact I had ALL of my Christmas shopping done by the last day in November? I just have to wrap everything, which totally isn’t a lot, especially considering the Hubs and I have decided not to do Christmas gifts for each other.
I’m sorry this post is all over the place today, we don’t have much going on these days; just a waiting game…

Sectet Santas

“Should we do it now?” oh God, do what? I thought, what now? We’d already done a blood test, pulled from his finger; that had hymolized before it got to the lab. What next? “Mom, Dad, Gage can you come out here please?”***yes, the nurses call us mom and dad*** when we came out of our room they gave us this…


Totally better than a finger prick blood draw!! Gagers LOVED it! He loves the bell, he loves the peddles! He loves it all! Thank you so much to Liam and His mom Nancy H. ***I try not to use names, but I’ve never met these people, so I think I’m ok, I hope*** Who thought to brighten up a little boys life, during his hospital stay. They didn’t just bring Gagers a gift they brought us a beautiful picture frame and toys for all the kids staying in peds right now. Thank you! Thank you! Thank you! And a huge thanks to the “Scale” family, who happen to be my Besties too, for bringing us the cutest table top tree, and gifts for Gagers and us as well!! But most importantly thank you, for driving down to visit us, and always thinking of us! We love you guys so much and are blessed to know you!!

Guess what?

That’s what chicken butt! Ok on a more serious note Gagers is back in the hospital. Old news, you say? Well we are not still here because of his pancreatitis, we are here because of his Candida; so HA! Candida is a yeast infection in his blood, much better then other locations for yeast infections with cottage cheesy discharge ***shudder, gag*** This is not the first time Gage has dealt with candida, he first got it back in August, they wanted to take the port out then but we convinced the docs to give us time; which they did and we cleared his system of the candida. So we thought.
We weren’t so lucky this time the candida is back and we have no more time, they are removing the port on Tuesday December 7 at about 12:00pm pacific standard time. So please if you have a moment at that time tomorrow please stop and say a prayer, send Gagers positive thoughts and your love he will need it. Our oncologists want to leave the port out, and place a PICC line in his arm. It also means we may be in the hospital for a couple of weeks, on fact we it’s a strong possibility we will be here for Christmas. We hope not but if we have to have one Christmas in the hospital in order to have so many more at home with Gage we can accept that.
This morning one of the docs on staff attempted to put the PICC line in. Unfortunately Gage had tinky tiny veins that “float” so it was unsuccessful. Which means that they will have to try again during surgery tomorrow. They will make it an Iv in his arm then they will “thread” ***shudder. Gag*** the PICV line through his arm ***thud, I just passed out*** Gagers also had his first CT scan today, and he did crazy, awesome good on that; slept the whole time. Who cares if he was doped up on benadryl and fentanyl? Don’t judge.


That’s Gagers going into the CT machine, he looked so tiny. He also looked like he wasn’t breathing, ***he was totally fine, I swear*** but it did cause me to have quick flash backs of “that night.” Thank goodness our shift nurse, who I love was with us she was very reassuring, pointing to his chest which was rising and falling in steady rhythm. Kid is gonna kill me, I swear.