Tag Archives: lukemia

Another day another dollar or something like that

So this day came way sooner than I thought it would have. I don’t know how ready I am for it, but to say the least I am so shocked, I don’t really know how to react. Monday, I’m sure the panic attacks will start as will my first day back to work.

I found out today from my union that my benefits ran out back in February  and that I have no insurance if I don’t start work on Monday. Fun times oh, and that I owe $2000.00 that can be paid in two payments in order to keep my insurance. YAAAY! -read sarcastic-

So I can ignore the $2000. bill because lets face it, I have not been working since August and extra money around these parts is scarce. Especially that much extra money but not paying means losing my insurance and Gage kinda needs it. Not sure if you heard but he has leukemia.  FUCK. fuckfuckfuckfuckfuck.

Sorry, I’m not going to not pay the bill. Obviously, I have to. Money is just going to be tight around here for a while, but he is totally worth it. Don’t feel too bad for me because I didn’t mention that the bill was actually supposed to be $3000. but I talked them down to $2000. “Totally based on my powers of persuasion, you proud? “<— Best. Movie. Ever.  So you see it could have totally been worse.

Just in case you were all wondering. I love my job and I am so grateful that I even have one in this economy, because this writing business sure don’t pay. I am also grateful to have health insurance because if I didn’t Gage would have a million dollar or more  medical bill.  That I know for a fact, I can’t pay.

Now for a bigger problem. What do I wear on my first day back to work after nine months?

His Story

They Deserve a Chance…

So one of the many things I remember from the hospital, one that I would like to forget is when we would go down for surgery, ct scans, or ultra sounds the nurses would sit my adult sized ass in a CHILD SIZED WHEEL CHAIR! which totally is not what this post is about, but I just remembered this one time when trying to shimmy my way out I actually got stuck and they had to have someone help me out. Because my ass was not meant to squeeze into a pediatric wheel chair. UGH- embarrassing memories, thanks blog post.

Anywho, the other thing I remember most about those trips in the hospital was I would be in the mini wheel chair, and Gagers would be on my lap waving to everybody we passed. I wouldn’t at look anybody we passed in the eye ever, because I hated their pitying looks it was bad enough hearing the “oh, that’s so sad and poor baby.” Really? You totally think that is appropriate to say when I can hear you? It’s not comforting to me. In fact I want to scream “yes, this is fucking sad. But would you like to know what’s worse? Pediatric cancer research sucks.”

Did you know? The federal government has made only very modest investments in research through the National Cancer Institute (NCI). For every six research dollars per patient with AIDS and every one research dollar per patient with breast cancer, a child with cancer receives only 30 cents. To us, and the families of the 35 children diagnosed with cancer each day, it is clear that much more needs to be done to ensure access to treatment and the opportunity to fully recover.

30 freaking cents, that is all Gage is worth to them. It truly is enough to make me want to march to Capitol Hill and shove this blog down their throats. To make them see pictures of Gage make them look at his face, hear his laugh, show them that he is one amazing kid. Make them love him like I do. I’d tell them to get their heads out of their asses and do something about childhood cancer research funding. Because every baby deserves the chance to grow old.

Ethan Deserves a Chance

Caleb Deserves a Chance

Gage Deserves a Chance

And so do the 12,500 children and adolescents in the U.S. diagnosed with pediatric cancer each year.

The Stinker

Bath time in our house is a HUGE event. For Gage. Not for me. Gage loves baths, mainly because he only gets them once a week. Then he is only in the bath for like fifteen minutes tops, with no splashing. While during the entire bath I am freaking out, begging Gage not to splash, and telling him to “sit down before you fall down.”

Normally Gage would be able to take a bath for as long as he wanted to, heck I have had to refill the tub with hot water half the time, he can play in the water for hours. That all changed in December when, after careful consideration and tons deliberation Gages doctors decided to take out his port. Because no matter how hard we tried, and how much medication we pumped into him, Gage kept getting candida in his blood. So with fear and trepidation, we sent Gagers back into surgery to remove his port and replace it with a temporary hickman line. Which is a pain in the butt, not only because I have to drive to the hospital every three days to get the dressing changed, because it’s an open site. But also the site can not get wet. Hence the excitement of bath time.

I have concocted my own special, Gage is gonna have a bath dressing. Which involves saran wrap and surgical tape. Poor Kid he hates this, mainly because every bath he gets, I use half a roll of the saran wrap and a whole roll of surgical tape. But Gage gets his bath, the nurses get a clean smelling baby for clinic the next day, and everybody thinks I’m a good mother for making it possible to Gage to bathe; so everybody wins.

I was begging Gage to give me the bucket, since he is on steroids right now I have to ask nicely and make it seem like he totally wants to give me the bucket. Or he might go Linda Blair on my ass, and throw him self backward in the tub, his head might start spinning; and throwing up chemo medicine on me. Come to think of it, he does that when I don’t get his food to him quick enough too. But he did give me the bucket, nice and calm like; and so I gave him an extra fifteen minutes in the tub. Ain’t I just the nicest?

End On A Happy Note

Happy Valentines Day to the loves of my life. You both bring me so much love, joy, and light to my life. I love you both more then mere words can say.

i carry your heart with me
(i carry it in my heart)
i am never without it
(anywhere i go you go, my dear; and whatever is done by only me is your doing, my darling)
I fear no fate
(for you are my fate, my sweet)
i want no world
(for beautiful you are my world, my true)
and it’s you are whatever a moon has always meant
and whatever a sun will always sing is you
here is the deepest secret nobody knows
(here is the root of the root and the bud of the bud
and the sky of the sky of a tree called life; which grows
higher than soul can hope or mind can hide)
and this is the wonder that’s keeping the stars apart

i carry your heart (i carry it in my heart)

by: e.e. cummings

Gage says HI!